Prenatal screening was extensive, probably more than would have been done in the United States. [...] even in the womb, doctors could see severe facial deformities ? droopy eyes, under-developed cheekbones and a tiny jaw. The lack of an outer ear and restricted ear canals also would mean she'd have hearing aids by the time she was 6 months old. In Belgium, it was unusual for babies to be born with Treacher Collins syndrome, caused by a genetic mutation. No wavering, despite the looks of disapproval from the medical staff before she was born and even after, in the intensive care unit. The next few years would be so challenging that the family moved back to the United States, both for family support and to seek medical care at Chicago's Children's Memorial Hospital and other institutions. Janet Beatty just wanted her daughter to be OK physically, to not be constantly worried that she might stop breathing, or choke. [...] 9 years old and finishing the fourth grade, she looks forward to the day a few years from now when her skull will have grown enough for cosmetic surgery. When people stare, she says, she just "smiles and says 'hi,'" because that's what her parents have taught her to do. "Why?" one asks. "Because Clara is awesome!" another quickly replies.
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